A Merry Christmas it is!

It was 12 days before Christmas and all through the house every creature was stirring even the mouse. We would all like to be snuggled in our bed for it is down right freezing toes in the south right now. Wylie with his rose color cheeks and snow cap with long flap ear muffs and Seth with his curious nature. Riki with her ear phones and Sherri on the cell phone, Jill going crazy trying to spot Santa and his sleigh......
Well anyhow. We are all excited about the holidays and trying to keep the spirits up. We have been blessed this year and we plan to make the best of our time with Wylie feeling better. Trying to decrease steroids and other meds that go along with it due to the side effects. We have a few pictures of our recent trip with Wylie to the Grand canon. The first picture is our family. Jill,Riki,Wylie,Seth&Sherri
Here is also a picture of Wylie standing in front of his dream the Grand Canyon. We also attended the 25th annual Brain Tumor Foundation Christmas Party this weekend, the boys has a visit with Santa Claus, and a few Shriner clowns. The event was very special for all the children and their family's.
Well it turns out Wylie has a set of angels in Texas. They have deemed themselves "Wylie's Texas Angels." Hearing about Wylie through a former neighbor Dr. Heather and Edward Casey they have been trying to make Wylie's dreams come true and our life sweet with the smiles it brings Wylie. We were sent a very inspiring letter, autograph helmet and shirt's from Matt Ryan of the Falcons. They gifted us let's say in a way we could not have done otherwise to make this Christmas very special. The picture is of our Angels in Texas. Thank you Wylie's Texas Angels.
Thank to all our angels around the world. Thank God for all of you. Have a blessed holiday. We will keep you posted on Santa's arrival. Hope we all have been good.

A season for giving thanks

It has been one month since my last post.Wylie celebrated his 10th birthday. We planned a birthday ballgame. We had the most wonderful turnout and support from his friends at his school. Mrs. Many and Mrs. Melody, and his coaches Daren and Huston were great. Wylie was so shocked and surprised he couldn't get out of the car for a while. He was amazed how much love was there. Our friend Silvija Withrow made the most amazing cake. Wylie Braves against the Loser Marlins. A game for history indeed. He laughed and danced when he got home, he was so happy. He no doubt had the best birthday ever. We want to thank everyone for their support. We have been blessed with prayers from all over the world. Our community support has been amazing. We have many things to be thankful this year, the health of our son is all that we ask this Holiday.
Our Thanksgiving was one to be remembered, everyone in this community and around the us made sure of it. We took Mr. Wylie to the Grand Canyon. Maybe without medical support on the decision but we couldn't refuse his desire. We saw the biggest hole in the world. We saw some of the most beautiful sights in the us. Wylie smiled and played a little in the snow, visited the only dry cavern in the us, went to Route 66 and watched tumble weeds roll down the road. Watched a Antelope race in a nearby field, and saw Sherri almost get trampled by a Bull Elk trying to get a picture. Seth and Wylie tried to see how far he could throw a snowball off into the grand canyon, Riki smiled and was amazed like all of us. They even threw a few snow balls at us. Thank you everyone so very much, we could never had done this without your help. We are all so thankful. We are also thankful we have a roof over our head, food to eat every day,our friends and family. Wylie has taught us so much these past few months. Hard to believe it has only been only a little over 3 months since his diagnosis. Wylie loves life and wishes most for Christmas a normal life again. Physically he is struggling with great deal of pain, constant headaches and electric shocks throughout his body with physical effort. He has been sleeping for the past week and a half. Unsure what to think of his change we have recently consulted his doctors. they claim he is responding great to the radiation. "It is doing what is expected", they say! Destroying brain cells, the mass of cells dying is causing his body to be very toxic. He is still receiving natural healing methods to build his body. Natural herbs like Boswellia, & enzymes. Shakes & smoothies, and chiropractic daily to control his pain, and boost his immune system and energy level. Sleep is when we heal the fastest. I guess a perfect time for teeth to fall out and new ones to grow. The down side of a lost of vitamins. He is probably healthier than most of us in every other aspect. Wylie is strong and missed his friends and Mtn view so very much. Wants to go back soon but said he needs to be able to stay awake to get anything done at school. We hope he will be able to return soon. Last MRI showed some tumor shape change and calcification of areas around the tumors. The doctor's claim it is the cells bleeding in the brain and that's "normal". Sorry if i don't buy it. Lets just say for the strong to survive the weak must die, and radiation will take no prisoners. Remember Wylie is strong he had the best naturopath, counselor, teachers, nurses, chiropractor, siblings, and mom's in Gilmer county to make sure of it. thanks for reading. Merry Chirstmas!

The gift that keeps on giving "Radiation"

That's what the oncologist say's. We finished 30 treatments of raidation on October 26th. He had his first full week of school last week since last school year. He loves school and tries so hard to keep up unfortunately at his own physical loss. He has been told he needs to decrease his school day in half. The radiation continues to kick butt and causes swelling in the brain and fatigue. Wylie celebrated his big 10 this past week. W had approximately 40 people show for Wylie's Braves game vs the Marlins. We created his own team and celebrated in a very big way at the Ball park in Ellijay. We also were able to see the Georgia game in person on Saturday. Wylie loves most sports and had a great day. We continue to treat him naturally with Boswellia and digestive enzymes. Boswellia is really making an impact and I beleive helping to heal him. Everything I read about it is showing in trials to destoy tumors of all kinds. Wylie has been keeping busy with school and friends. Thank you to his teachers, other students and friends for being a part of his birthday and community events. the golf tournement and motorcycle fundraisers have made our life easier. The school also sold over 600 cupcakes to help our family. thank you so much for all your support. Not sure how we would do it without everyones help. Wylie has faith that his purpose will be served. God bless.

Wylie is almost finished with radiation. 2 more treatments next week. i don't believe the doctors expected him to be doing so well during this period. i have to believe God and his great wisdom steered us in the right direction for his natural healing methods as well. Clinical trials are being done with fantastic results with the herb Boswellia and digestive enzymes are the key to attacking brain tumors. We are doing this on our own with the radiation. It gives the radiation a better chance at getting to the tumors. We have to tell his body these tumors are not normal proteins coatings. That is why they don't attack them normally. I think they are listening. We had exciting news last week when Dr. Shu showed us the ventricles were opening up in his brain, the radiation may have shrink the tumors, a little on the new growth. They expected more swelling over this period. But his got better! Over the past 2 weeks the strength has come back in his right hand. He can walk better also. Not much change in his vision as of yet. We will take anything we can get at this point. We will do another MRI DEC 1st to see if we have tumor decrease or re-growth. We could have a honeymoon for 6 month, that period is key. Most aggressive tumors take off after that period. It will be a wait and see period. I believe God has a special purpose for Wylie and his destiny is far from over.We pray everyday for our son and his health and healing. A miricle did occur we think. Wylie felt a shift in his body suddenly a few weeks ago. He thought he was dying, shocking pain came from his body and horrible headaches, he said God ws asking his to solve math problems and God wanted to know exactly where the tumors were. He started to improve the next day as we held our breath. He is an awesome child with so much love for everyone. We had a great visit from his aunt Jenny(who is just learning to walk after a severe auto trauma), Grandma pat, uncle Jim, and Cousin Walker from Florida. We also had Great Aunt Wendy from New York, and Cousins Mike and Terri from Marietta this past weekend. They came to attend the motorcycle ride for Wylie and visit.
The motorcycle event was fun,we had a great time with three bands and food. Wylie enjoyed his day so much. Thanks to the help of so many people it was a great success. Bridgett Parrot was the organizer. Thank you to everyone who sponsored and participated. Thank you to his school teachers for their help.
Wylie is doing well in school. He has good and bad days. He complains of headaches and some nausea on and off. He is having a little hearing problems (he always has suffered from selective hearing). Radiation can cause a variety of symptoms. He has a roaring in his ear. Overall he tolerates it all like a champ. Being tired out is his complaint. We all have forgotten what sleep is. After Wed of next week we hope to say goodbye to the 430 wake up call. Alarm will be thrown out the window.

Inspired by Camp Sunshine

Wylie is truly amazed how friendly the staff and volunteers were at camp sunshine. He said today "The people at camp sunshine all, from the first moment we got there, acted like they knew us forever." They were great. A camp for kids like wylie and their familes. Wylie climbed 1/2 way up a 20' climbing wall. He was tired, he cried and got mad, but amazed us all. He is so determined to get his life back. He is tolerating the radiation so well. Goes to school most days and therapy a few days a week. Almost done we tell each other everyday. The trips to Atlanta seem shorter everyday. We see light at the end. Improving everyday. God Bless you all.

I want to give a special thanks to Anna Jenkins a great local massage healing friend who created this unique way for all to give special thoughts and prayers to Wylie and our family. She worked very hard to make life breathable for us when it was so painful to make it through the day. She also originally planned a special Golf event, which is now being handled by Mitchell Bowen & Pat, which will be at the 23rd of October to benefit Wylie's wishes and needs. He plans to hike the Grand Canyon and hoping to get to the great Continental Divide. He would like to visit Paris. He says he plans on Living in Paris one day.
There are so many other folks that have done so very much to help our family and the prayers that continue to reach world wide. Thank you to Dr. Bonnie Bradley that helped us discover Wylie's condition. Prayers go from Germany, Canada, Croatia, new york, California, Alabama, Tennessee, Florida, Texas, New Mexico and especially our strong willed, God Loving friends in Ellijay, Georiga. When we call the Lord's name he listens. Wylie will survive this to fight another battle. We never know our time on Earth, but I do believe Wylie has a mission and it won't be just 9 years. He is very special not only to me and our family but to many many others. He has a special way a loving giving way, maybe ahead of his years in his thoughts and aspirations. He shows me everyday things that amaze me. he was able to today begin opening and closing his hand, this is a great change in his healing, he is walking great, talking, swallowing, healing in leaps and bounds. We had a setback one day since we started on Tuesday, claimed he was having electric shocks in his body, loss of balance, and severe pain in the back of his head. However he is gaining weight when they say he should be losing, really they say he wouldn't get any response at this point with radiation. I believe the natural treatment is making a huge impact on his healing. Thank you Jennifer. Doctor's say that maybe radiation caused swelling and his pain that day. I think it was the power of his body turning on. He will show the world that our body heals above down and inside out. When we have what we need we can heal. We are doing great after 17 rounds of radiation. 13 to go. He loves being with his friends at school. Just said he needs some breathing room. Wylie is very positive and reminds me everyday how important it is love your family and embrace each day like it may be your last. Go hug your family. Thanks for the prayers. Jill

Wylie's wish: Braves Practice & Game

Wylie went to batting practice on wednesday with his family. Thanks to his coaches and their families. The Allen's, Betsy Clayton and many others that are un-named. We know you love us and have made one of Wylie's wishes come true. Enjoy the pictures. We had a great times and stood beside the best of the best ball players. We all have the time of our life. Thank you.

13 radiation treatments down, 17 to go. MRI on wed to see progress. Still on natural diet made up of love, vitamins, sunshine. Thanks for all your support.

wylie's wish today is to be able to run again

I have received 9 radiation treatments so far. I am on a cool diet set up by mom and mom's friend Jennifer Houle a local naturopathic doctor. I take 7 different medicines 2 times a day and 8 different herbs or vitamins a day. I eat as fresh of everything possible. My least fav medicine is liquid potassium, "Nasty" .The doctors told me I had to have this. YUK! I promise mom everything under the sun if I can just not take it. They say I am very healthy and doing good except the potassium beign low caused by the other medicines. I eat Fruit and veggie smoothies for dinner these days. The main thing we are doing is taking an herb called Boswellia and ginko,and a protein attacker to help the radiation attack the tumor like pacman. Boswellia can get rid of tumors even in Women with breast cancer tumors. Mom dreamed about gum healing me, and I thought very cool. Any reason to chew gum is a good one. Boswellia comes from a gum tree, Good dream mom! I went to a kangaroo farm last weekend but they would not let me take my baby kangaroo home. Maybe I will sneak in one night and get it. They will never know, they have hundreds. Who knew this was in Ellijay. I hear a class trip calling our name. Thank you everyone for helping my family make some of my wishes come true.

We believe God will help heal me, we just have to get the right stuff in me that my body needs. Thanks for all the wishes and help.

Wylie is doing great

7 treatments down 23 to go. Feeling pretty good. Back in school part time. Having headaches and very tired at the end of the day. He say's hi and thank you for all your support. Especially for all wishes.

Radiation Scheduled

Wylie is still in good spirits!  His picture was in last week's paper with baseball player Dustin Carder, who plays for the Baltimore Orioles. He begins a 6 week course of radiation starting on Wednesday to try to shrink the tumors.  The tumors have been catagorized as Astrocytomas.  He is eating through a nose tube at this time because he is unable to swallow.  Hopefully with radiation, this will all get better. We are hopeing and praying for the best possible for this sweet boy.  Continue to keep him in your thoughts and prayers

Wylie's new healing room

Wylie is spending his day's with mom the office. He has a lavender healing room of his own. A massage table, a tv & vcr, he rests when he needs, plays and creates. Thanks to some very special friends he now has a laptop to view his blog and facebook friends and their comments. He is so thankful to his loving support from his school, friends and the ETC employees. On a sad note he began having loss of feeling from his chest down yesterday, toes especially were painful. He has humor and determination, and faith. Thank you to all that send him wishes and keep him in their prayers. Faith can Heal. Choosing the person or the direction the healing will come from is the toughest part. Love to all. Wylie's mom Jill

Nutrition & Detoxification

Wylie is now on a natural nutritional and detoxification program. Wylie was a bit nervous about starting this since one of the stipulations was "no sugar". But, so far so good. Wylie has been enjoying fruit & vegetable smoothies, freshly made juices, as well as lots of fruits, vegetables and nuts. Here's to getting healthy!

Physical Therapy

Wylie was evaluated by the physical therapist today.  He is going to have to do some homework as well as do his workouts with the therapists.  Wylie also was given the green light to start getting massage for his stiff neck.  He has been begging his mom to give him an adjustment but it is too soon for that.  Hopefully the massage will give him some relief. 

Still no word on the pathology reports.  Wylie's doctors are doing everything they can to get the results in.  Let's all just hope that no news is good news.

Wylie at Home

Wylie was released from the hospital last night. He is beginning the process of recovering from his biopsy procedure. There is still no word from the doctors regarding the pathology report.

Wylie is happy to be home but gets tired very quickly. He hopes he will feel up to going to get his picture taken at school tomorrow, it's picture day after all. Wylie might just find the energy after his mother makes him a power smoothie for breakfast!

Biopsy Results

The Doctors at Egleston have determined that both tumors are Gliomas, as far as what type it is still unknown. They should hopefully have results on that in the next little while.  Treatment options for this is still unknown as well.  Wylie should be home in the next few days in order to heal from his biopsy surgery.  He will need a minimum of 4 weeks to recover before they start any treatment.  On a lighter note, Wylie was up and walking around today with help.  He was able to stand for a little while to play Connect Four with one of the Nurses.  You know he won!

A little later Wylie was able to go outside for a while.  Fresh Air is a must... and the first stop... The Wishing Well

Friends Visit Wylie

Today Wylie got to visit with some friends. This is the family that has been taking care of Seth and Riki since Wylie was admitted to the hospital. He certainly looks good and I hear that he was hungry today! The biopsy results will be in tomorrow so keep checking the post for updates.

Day 7

Last night, Wylie was finaly able to get some rest. This morning, he is doing much better & now able to pull himself up. Neck is still sore but doing well. Right arm is doing better & both eye's are doing better. He made the Dr. smile. We have started giving him vitamins which will help a whole lot. Wylie still needs lot's of healing prayers. He has a long road ahead of him but with the love everyone has & the prayers, we have faith that everything will be just fine. Thanks to everyone.

Courage

Little Wylie continues to exhibit courage throughout this difficult time. This brave boy is contending with neck pain resulting from the biopsy procedure he had on Wednesday. When asked if he wants pain medication, Wylie says, "No, can you give me something to sleep so I can get better." He knows, even at this young age, that you heal when you rest and he is working hard at healing.

His little brother Seth held Wylie's hand tonight. Wylie could see that his little brother was somewhat apprehensive about the situation and Wylie tried to comfort him by squeezing his hand and telling him it was alright. Wylie's courage to comfort others continues to demonstrate his good character and sweet nature.

Looking forward to tomorrow with hope and the possibility of moving out of the ICU.

Wylie's biopsy results due in Monday

The results of Wylie's biopsy have been sent off to be analyzed. The results will be in sometime Monday afternoon. We will keep you posted. In the mean time, Wylie needs your prayers right now.

Our sweet boy resting, 8-26-10

 Wylie is doing lots of resting right now. He's doing great & wants to go home. Having another MRI today so they can check things after the biopsy. This is standard procedure. His neck is VERY sore but he is able to move it. We will be working with him for days, to get him back up & playing baseball real soon. Wylie is a very tough little man & is loving having his family right by his side.

MRI Scheduled

An MRI is scheduled today to check for swelling and fluid. Wylie is hoping for good news.  He is holding his family close and is staying tough.

Almost ready for his close-up

Wylie was relieved to discover that the doctors did not have to shave his head. Aside from some facial swelling, Wylie is looking good.  He is a real trooper, even through all the pain.  The doctors have given him something to make him comfortable until morning.  By then, we hope he will be ready for his close-up.  Until then, we will have to settle for this picture.

Wylie is in the Recovery Room

Wylie is currently in the Recovery Room and still groggy from the surgery.  The doctor was able to obtain samples of the two different tumors in Wylie's brainstem.  He was also able to debulk one of the tumors by removing approximately 30% of the mass.  This is believed to be the tumor that is causing Wylie's symptoms.  Wylie and his family are hoping for a good report from pathology by Monday.  Please keep him in your prayers.

Post-Op

Wylie has come out of his 5.5 hour surgery just fine.  The surgeons were able to remove 30% of the 2nd tumor.  Biology results will be back on monday to determine exactly what it is.  He is heading into recovery right now, and should be awake soon.

5.5 Hour Biopsy Procedure

Wylie has begun his 5.5 hour surgery to obtain a biopsy. He has asked for everyone to pray and be hopeful. Wylie will spend the night in the ICU tonight and will hopefully be returning to his regular room by tomorrow.

Biopsy Scheduled

Brave little Wylie is scheduled for a biopsy this morning at 11:00.  He has been catching up on his Facebook this morning and he asks that everyone send him Petville gifts on his Facebook.  Thanks for your prayers and keep Wylie in thoughts today.

A Fund For The Family

A Trust fund has been set up for Wylie and his family at Community and Southern bank (The old Gilmer County Bank/Appalachian Community).  You may go to any Community and Southern bank to make a donation to Wylie Kiser or Jill Darling.  I will post a link soon so you may make your donation online.  Thank you everyone for your support, and we will be posting updates as soon as we hear anything.
Ellijay - Main Office
P.O. Box G
829 Industrial Boulevard
Ellijay, GA 30540
Phone: 706-276-8000
Fax: 706-276-8010
Anytime Access: 706-636-2265 (BANK)
Community Room: 706-276-8059

About Wylie

Wylie Kiser is a fun-loving, 9 year old boy who lives with his family in Ellijay, GA. His birthday is 11/3/2000.   Wylie loves to play baseball and enjoys boyscouts and the outdoors.  On Sunday evening Wylie and his family were informed that he had a tumor on his brainstem.  There are few treatment options for Wylie at this point and we would like to ask that everyone who reads this sends up a prayer for this precious little boy.  Wylie's wish is for a miracle right now.  Wylie's family respectfully requests not to receive any calls at this time.  They really need some quality time together right now.