Thursday, April 28, 2011

God will save me!






"God will save me, that is a fact and don't forget it, Love, your little warrior."
When I placed on my computer "Save my son" Wylie then place his own note with his own idea of how it's going to be. He says he just knows. God talks with him and tells him how it's going to be. Wylie is a 8 month survivor from his initial diagnosis, and nine months since initial symptoms appeared. Not sure how, but he just knows things that others don't seem to be aware of. I believe he is a chosen one, and angel for sure. He is charismatic in his own special way. He loves his family and especially feels it is his place to care for his little brother Seth. Wylie seems to radiate in energy and move us in his stories. He is passionate about life and what it he had to offer in it. He want to help others and is considering being a neurosurgeon,or scientist. He was recently befriended by a University of Florida archaeologist Alex Kittle who gave his some of his dig finds and invited him to the University to see what they have dug up. Wylie was recently blessed with a Make A Wish trip on the Disney Magic cruise. He was in dream land for sure. He met pirates,snorkeled seeing Nemo & Dora, giant sting ray's and giant sea turtles. He Sailed with all the Disney characters to the Virgin Islands. He had a spectacular time with his family. He was very tired and weak after this trip and had a few falls. For Wylie Any falls in which he hits his head spirals into a downward pain cycle. He is recovering well and feels great today. Dodging a few very scary tornado's made for an interesting. We are so sad for the victims of the Tornado of April 27th in Tuscaloosa Alabama and those here in Georgia. Wylie's dad's town of Piedmont Alabama was hard hit. Wylie is back and just finished his CRCT testing time. He has been doing homebound schooling. He said it was a breeze. We are down to the final school 20 day's of school count down. Maybe he will be feeling good enough to finish the last month at school. We are waiting for the next MRI and pray for tumor shrinkage June 1st. We are still using natural herbs/vitamins, and interesting blue green algae shakes that start Wylie's day. We have added Papaya enzymes to attack his brain stem tumors. The secondary tumor seems to have calmed down and hopefully shrunk. No headaches and no vertigo for the past few weeks. Its time to decrease nasty steroids and heal. His doctor thinks he is doing great. Weak from fatigue. Wylie was asked to help play and coach on his baseball team from last year. He says he is ready for action in tonights game. Enjoy the pictures! Please share your comments so that Wylie can see that there are people out that that feel what he is going through and can share in his excitement. God bless all of you for your help and support to make Wylie's life special. His goal is to get to the great barrier reef. We just have to figure out where exactly that is!

Wednesday, April 6, 2011

Spring is in the air. Wylie's progress is good.


Wylie has climbed many mountains since last posting. He is holding up well. A little tired and cranky these days. He is practicing baseball to a limited level. Helping coach his team when he is down. Ball season starts next week. Wish him luck. His most recent MRI in the first of March revealed a shrinkage of his primary pontine tumor of 3%. The secondary medullary tumor has increased in size. This tumor extends down into the upper spine. Oncologist Dr.Janss beleives this could be a reaction to radation treatment. Symptoms became worsened 1 month ago when his ability to speak and swollow and function. Wylie is now in a higher dose of steroids to decrease the swelling in his brain. It worked great, he has now inproved and is now back doing school work as a homebound student. Thanks to Aunt Tammi we were treated to a fun filled weekend in Chattanooga. Wylie enjoyed the trip touring the Tennessee River on the old Southern Belle paddleboat ship. A great way to start our spring break. Wylie celebrated this month with family and friends as Allyson from The Make a Wish Foundation informed Wylie that he was granted a Disney carribian cruise. We are so excited! As winter comes to a close our spring has started with a bang. Tornado's hitting Ellijay this week left us in the dark ages with carrying water and primitive cooking. For a family that loves to camp it works for us. Our spring break goal was to walk as much of the appalacian trail as possible. We evaluated our options and chose camping near the trail at Vogel state camp ground in the north Georiga area. Wylie made it to the trail, YES! We managed a steap 3 mile hike. Wylie was as proud as we were of him. The storm came four hours later. THa goodness we took advice to pack up camp after only 1 night and head home. The storm resulted in damaging tornado and 70 mile/hr winds in our home town. We will be excited to leave the 35 degree temperatures to discover whatever the Carribian has to offer. We will post again to up date after Wylie's wish trip.