Saturday, October 23, 2010

Wylie is almost finished with radiation. 2 more treatments next week. i don't believe the doctors expected him to be doing so well during this period. i have to believe God and his great wisdom steered us in the right direction for his natural healing methods as well. Clinical trials are being done with fantastic results with the herb Boswellia and digestive enzymes are the key to attacking brain tumors. We are doing this on our own with the radiation. It gives the radiation a better chance at getting to the tumors. We have to tell his body these tumors are not normal proteins coatings. That is why they don't attack them normally. I think they are listening. We had exciting news last week when Dr. Shu showed us the ventricles were opening up in his brain, the radiation may have shrink the tumors, a little on the new growth. They expected more swelling over this period. But his got better! Over the past 2 weeks the strength has come back in his right hand. He can walk better also. Not much change in his vision as of yet. We will take anything we can get at this point. We will do another MRI DEC 1st to see if we have tumor decrease or re-growth. We could have a honeymoon for 6 month, that period is key. Most aggressive tumors take off after that period. It will be a wait and see period. I believe God has a special purpose for Wylie and his destiny is far from over.We pray everyday for our son and his health and healing. A miricle did occur we think. Wylie felt a shift in his body suddenly a few weeks ago. He thought he was dying, shocking pain came from his body and horrible headaches, he said God ws asking his to solve math problems and God wanted to know exactly where the tumors were. He started to improve the next day as we held our breath. He is an awesome child with so much love for everyone. We had a great visit from his aunt Jenny(who is just learning to walk after a severe auto trauma), Grandma pat, uncle Jim, and Cousin Walker from Florida. We also had Great Aunt Wendy from New York, and Cousins Mike and Terri from Marietta this past weekend. They came to attend the motorcycle ride for Wylie and visit.
The motorcycle event was fun,we had a great time with three bands and food. Wylie enjoyed his day so much. Thanks to the help of so many people it was a great success. Bridgett Parrot was the organizer. Thank you to everyone who sponsored and participated. Thank you to his school teachers for their help.
Wylie is doing well in school. He has good and bad days. He complains of headaches and some nausea on and off. He is having a little hearing problems (he always has suffered from selective hearing). Radiation can cause a variety of symptoms. He has a roaring in his ear. Overall he tolerates it all like a champ. Being tired out is his complaint. We all have forgotten what sleep is. After Wed of next week we hope to say goodbye to the 430 wake up call. Alarm will be thrown out the window.

Tuesday, October 12, 2010

Inspired by Camp Sunshine

Wylie is truly amazed how friendly the staff and volunteers were at camp sunshine. He said today "The people at camp sunshine all, from the first moment we got there, acted like they knew us forever." They were great. A camp for kids like wylie and their familes. Wylie climbed 1/2 way up a 20' climbing wall. He was tired, he cried and got mad, but amazed us all. He is so determined to get his life back. He is tolerating the radiation so well. Goes to school most days and therapy a few days a week. Almost done we tell each other everyday. The trips to Atlanta seem shorter everyday. We see light at the end. Improving everyday. God Bless you all.

Thursday, October 7, 2010

I want to give a special thanks to Anna Jenkins a great local massage healing friend who created this unique way for all to give special thoughts and prayers to Wylie and our family. She worked very hard to make life breathable for us when it was so painful to make it through the day. She also originally planned a special Golf event, which is now being handled by Mitchell Bowen & Pat, which will be at the 23rd of October to benefit Wylie's wishes and needs. He plans to hike the Grand Canyon and hoping to get to the great Continental Divide. He would like to visit Paris. He says he plans on Living in Paris one day.
There are so many other folks that have done so very much to help our family and the prayers that continue to reach world wide. Thank you to Dr. Bonnie Bradley that helped us discover Wylie's condition. Prayers go from Germany, Canada, Croatia, new york, California, Alabama, Tennessee, Florida, Texas, New Mexico and especially our strong willed, God Loving friends in Ellijay, Georiga. When we call the Lord's name he listens. Wylie will survive this to fight another battle. We never know our time on Earth, but I do believe Wylie has a mission and it won't be just 9 years. He is very special not only to me and our family but to many many others. He has a special way a loving giving way, maybe ahead of his years in his thoughts and aspirations. He shows me everyday things that amaze me. he was able to today begin opening and closing his hand, this is a great change in his healing, he is walking great, talking, swallowing, healing in leaps and bounds. We had a setback one day since we started on Tuesday, claimed he was having electric shocks in his body, loss of balance, and severe pain in the back of his head. However he is gaining weight when they say he should be losing, really they say he wouldn't get any response at this point with radiation. I believe the natural treatment is making a huge impact on his healing. Thank you Jennifer. Doctor's say that maybe radiation caused swelling and his pain that day. I think it was the power of his body turning on. He will show the world that our body heals above down and inside out. When we have what we need we can heal. We are doing great after 17 rounds of radiation. 13 to go. He loves being with his friends at school. Just said he needs some breathing room. Wylie is very positive and reminds me everyday how important it is love your family and embrace each day like it may be your last. Go hug your family. Thanks for the prayers. Jill

Saturday, October 2, 2010

Wylie's wish: Braves Practice & Game
















Wylie went to batting practice on wednesday with his family. Thanks to his coaches and their families. The Allen's, Betsy Clayton and many others that are un-named. We know you love us and have made one of Wylie's wishes come true. Enjoy the pictures. We had a great times and stood beside the best of the best ball players. We all have the time of our life. Thank you.





13 radiation treatments down, 17 to go. MRI on wed to see progress. Still on natural diet made up of love, vitamins, sunshine. Thanks for all your support.