Thursday, April 28, 2011

God will save me!






"God will save me, that is a fact and don't forget it, Love, your little warrior."
When I placed on my computer "Save my son" Wylie then place his own note with his own idea of how it's going to be. He says he just knows. God talks with him and tells him how it's going to be. Wylie is a 8 month survivor from his initial diagnosis, and nine months since initial symptoms appeared. Not sure how, but he just knows things that others don't seem to be aware of. I believe he is a chosen one, and angel for sure. He is charismatic in his own special way. He loves his family and especially feels it is his place to care for his little brother Seth. Wylie seems to radiate in energy and move us in his stories. He is passionate about life and what it he had to offer in it. He want to help others and is considering being a neurosurgeon,or scientist. He was recently befriended by a University of Florida archaeologist Alex Kittle who gave his some of his dig finds and invited him to the University to see what they have dug up. Wylie was recently blessed with a Make A Wish trip on the Disney Magic cruise. He was in dream land for sure. He met pirates,snorkeled seeing Nemo & Dora, giant sting ray's and giant sea turtles. He Sailed with all the Disney characters to the Virgin Islands. He had a spectacular time with his family. He was very tired and weak after this trip and had a few falls. For Wylie Any falls in which he hits his head spirals into a downward pain cycle. He is recovering well and feels great today. Dodging a few very scary tornado's made for an interesting. We are so sad for the victims of the Tornado of April 27th in Tuscaloosa Alabama and those here in Georgia. Wylie's dad's town of Piedmont Alabama was hard hit. Wylie is back and just finished his CRCT testing time. He has been doing homebound schooling. He said it was a breeze. We are down to the final school 20 day's of school count down. Maybe he will be feeling good enough to finish the last month at school. We are waiting for the next MRI and pray for tumor shrinkage June 1st. We are still using natural herbs/vitamins, and interesting blue green algae shakes that start Wylie's day. We have added Papaya enzymes to attack his brain stem tumors. The secondary tumor seems to have calmed down and hopefully shrunk. No headaches and no vertigo for the past few weeks. Its time to decrease nasty steroids and heal. His doctor thinks he is doing great. Weak from fatigue. Wylie was asked to help play and coach on his baseball team from last year. He says he is ready for action in tonights game. Enjoy the pictures! Please share your comments so that Wylie can see that there are people out that that feel what he is going through and can share in his excitement. God bless all of you for your help and support to make Wylie's life special. His goal is to get to the great barrier reef. We just have to figure out where exactly that is!

8 comments:

wylie's mom said...

I love you Wylie. You are brave and my hero!

Shannon Phillips said...

Jackson and I continually pray for you! I'm glad you had such an awesome time on your Disney trip. Jackson wants us to get together soon. And, the Great Barrier Reef is in Australia and we want to go too!!!
Love,
Shannon & Jackson

Unknown said...

Love and Prayers ! Go Slugger have a great time with your team !!!!!!!!!!!

sarahmccall said...

Wylie!! You have been doing some awesome adventurous outings!! I hope you are having fun, and I LOVE looking at your photos of all you are doing! Godbless you and your moms and dad and Seth, and all your family!!!

Anonymous said...

You are right, Wylie. God will save you and that is a fact. He told me, too. You keep believing because Jesus told us that we are healed when we have faith in him. I have been claiming your victory and praising God for what I know he is doing in your body. May you and your family be Blessed. You have so many people praying for you. My family has prayed for you every day for many months.

Anonymous said...

Love and Prayers

DIPG Parents

Anonymous said...

Love to you and yours

Anonymous said...

hey Wylie this is john.How are you doing? I hope you have a great summer and a good rest of the day. I just wanted you to know that we are praying for you. I ask God every day to help you. I am glad you are my friend.

John Wood