Wylie has climbed many mountains since last posting. He is holding up well. A little tired and cranky these days. He is practicing baseball to a limited level. Helping coach his team when he is down. Ball season starts next week. Wish him luck. His most recent MRI in the first of March revealed a shrinkage of his primary pontine tumor of 3%. The secondary medullary tumor has increased in size. This tumor extends down into the upper spine. Oncologist Dr.Janss beleives this could be a reaction to radation treatment. Symptoms became worsened 1 month ago when his ability to speak and swollow and function. Wylie is now in a higher dose of steroids to decrease the swelling in his brain. It worked great, he has now inproved and is now back doing school work as a homebound student. Thanks to Aunt Tammi we were treated to a fun filled weekend in Chattanooga. Wylie enjoyed the trip touring the Tennessee River on the old Southern Belle paddleboat ship. A great way to start our spring break. Wylie celebrated this month with family and friends as Allyson from The Make a Wish Foundation informed Wylie that he was granted a Disney carribian cruise. We are so excited! As winter comes to a close our spring has started with a bang. Tornado's hitting Ellijay this week left us in the dark ages with carrying water and primitive cooking. For a family that loves to camp it works for us. Our spring break goal was to walk as much of the appalacian trail as possible. We evaluated our options and chose camping near the trail at Vogel state camp ground in the north Georiga area. Wylie made it to the trail, YES! We managed a steap 3 mile hike. Wylie was as proud as we were of him. The storm came four hours later. THa goodness we took advice to pack up camp after only 1 night and head home. The storm resulted in damaging tornado and 70 mile/hr winds in our home town. We will be excited to leave the 35 degree temperatures to discover whatever the Carribian has to offer. We will post again to up date after Wylie's wish trip.
5 comments:
I could not have asked for a better family to share my life with. Wylie has made each one of us much stronger in everything we do. We have the most wonderful family and close friends. Every day is a new adventure and the love we have for each other is just amazing. Thank you God, for keeping us strong and helping us to keep the faith.
I'm so glad that you guys had a fun safe camping trip. I can't wait to hear about the cruise! Hugs to everyone
Hope thde cruise gives you all a chance to forget for a little while. Our prayers and thoughts are with you.
My Johnny never forgets a prayer before a meal or his bedtime without asking God to help Wylie. We still have faith. May God bless Wylie and your whole family.
All of your support gets us through the day. Wylie's knows how much he is loved by those that know him.
Thank you so much.
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