Soon we will be celebrating one very very long year of survival for Wylie. He is holding his own lets just say. Schools out. Although he will miss his home bound teacher Mrs. Myra he is relieved to have completed the fourth grade. Excelling on CRCT testing and with honor roll average on completed work. His doctors say nothing changes the smarts in a kid. "If they are smart they are smart." He is struggling with changes in medication. Less steroids means more fatigue, attitude, and atropy in the right side, and loss of balance, control of tounge, and throat. The MRI on June 1st showed growth for the first time of the primary tumor in a year. Secondary/posterior tumor is very active. THis was the domant one. We sure made is mad. Could be radiation effects or simply the process of dying tumor cells, we don't know. Meeting in two weeks to discuss changes after medical guru's meet next week to evaluate the changes.The form a game plan. Dr. Janss know's her stuff we have a new MRI test that measures proliferation of the tumors. We may have to wait until August to compare the changes to really compare. Wylie playslike a 10 year old when he can. Enjoying the cool pool and air condition in between. The heat staying at around a 100 or more is especially rough on him. Any swelling is more than he can handle. He finished his baseball season as part time coach. He enjoyed the involvement. I can honestly say when was playing it came so natural to him. I pray he will be given another chance to enjoy the things he loves most. Not much planned for the summer yet. Can't hide from the heat. Would love to see our new York relatives. Thank you so much for your support. We cry we laugh we get up everyday to fight for another day. We are warriors!
2 comments:
Just remember, some times we have to go through some harder times than usual in order to make it a better road to travel. You ARE truly amazing Wylie and being able to spend every day with you, to help you, to smile, laugh, and cry with you, makes us as a family much stronger. We love you more than anything in this world and believe that God is holding your hand every second of the day. We have to keep our faith and love. Your hugs and those sneaky grins are priceless. :)
Will put him back on my prayer list. I hope he enjoys the pool and video games- pretty much all any of us van do in-this heat. Sandy u don't know me but last year alot of us were praying for Wylie and your family.... Maybe u can get to NY. Never say never
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