Round One chemo complete.
December has arrived. November was eventful after the boys and I moving the end of September to our new house to better accomodate Wylie's growing heathcare needs and comfort. Wylie celebrated his 11th birthday on Nov 3rd with a movie then a seafood dinner with a few of his buddies at home. We had our first snowfall of the season already. On the medical side of things we have just completed the first series of chemotherapy treatments. Wylie has been very sick for the past few days. Sort of a normal thing after every other wednesday treatments for the past 2 months. Very confusing as to how much the medicine and how much the tumors are effecting Wylie. He is a strong boy but becoming very frustrated with all the pain,sick feeling, and being unable to care for himself. It is so hard for Mr. independant. He can not play, write even read very well right now. He has been to school a few times this month. He is very smart and usually catches up on those days or with the help of his new homebound teacher Mrs. Roberts. He lost his friend and homebound teacher Mrs. Myra Thomas to metastatic breast cancer recently, she also was his first grade teacher. Wylie can only walk with assistance. Wylie is now wheelchair bound. His last attempt to walk independantly ended with a head injury 2 weeks ago. Getting in and out of the car is his biggest challenge every day having to take his little brother to school and go to work with mom where he has his own room. The therapy has created much more weakness and dizziness than before. We celebrated thanksgiving close to home with lots of turkey and stuffing. He loves his real tree and milticolor christmas lights. He is excited about having a nice Christmas and celebrating it in our new home. Although we only a few nice days out of a week we look forward to the brighter days. Lots of rest and love helps. He is strong and a fighter. Wylie now has a feeding tube because eating has become a chore. Choking not much fun either. Chemo makes all muscles weak even the swollowing muscles. The brainstem where the brain tumor is controls swollowing, breathing, and use of arms and legs. Wylie's brainstem tumor has grown considerably since previous MRI. We pray the chemo and herbal treatments will help slow the progression. His next MRI will be next week. Please pray for a change in this tumor that has devastated Wylie's life. His brother and I want Wylie back to being able to enjoy life with us. He enjoyes movies and playing computer games. Wylie's only wish is to stop hurting. He said he doesn't want anything for Christmas he has everything he needs. But mom knows better! My biggest wish is for my children is to know God, have good health,happiness and to experiece the world first hand. Wylie's top wishes are seeing the Great Barrier Reef in Australia, the Statue of Liberty, the Rocky mountains, Arizona again. We do have an offer to visit a friend in Colorado in the spring. Maybe we will be well enough to go to New York in the summer. Good health and Merry Christmas to everyone!
2 comments:
He is in our thoughts and prayers. I was honored to meet him, and I hope that the doctors can do something to ease his pain.
He is in our prayers as well. Does Wylie like Baseball? Also, does he have a PSP or DSI if he does not would this be something that on his good days he might enjoy playing?
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