Christmas wish

Twas the night before Christmas and all through the house not a creature was stirring except a gift wrapping eating cat. The children all nestled in bed with Wylie's feeding tube feeding tube wrapped around his head, and Seth dreaming of catching Santa instead. As I type Wylie's blog I heard such a clatter and what do my blurred red eyes see out on the lawn but eight tiny reindeer with Santa on his sleigh. So I asked Santa did he think I was good this year and he said it was a 50/50 split for sure. So with a lot of effort i could turn my coal in to diamonds he said. Then he suddenly tx'ed his reindeer to dash away dash away all and then he lost his call.
I asked Wylie what his dream Christmas present was and this is what he told me. "I want my tumors to go away." Wylie and his brother will have a great Christmas thanks to many folks that love them very much. Wylie is a loving boy who wants to do what other children are doing. He has been blessed with the greatest school and community ever. He was surprised by a group of his elementary teachers, principals and friends singing Christmas Carols. Wylie is now taking the new nutrient product so many have graciously helped with ordering. We were visited today by Wylie's baseball coach and family, then a family from Australia today. Wylie's number one favorite dream vacation destination. He was so glad for the visit and stories of Australia.
p.s. Thank You Lord for a blessed Christmas that Wylie and Seth could enjoy. Thank you also for the many prayers and help from everyone this year. Happy Birthday Jesus.

There is no known medical cure for Wylie's condition

I was told total that there is no other medically known treatment for my sons condition which has now progressed to high grade Glioma and spread to other area of the mid brain. Medically they informed me today that they can only now try to keep him comfortable from this point on and will not use chemotherapy any longer. We will try every attempt to strengthen his body to help him fight. Many known natural choices have not been an option while on chemo or radiation. Wylie is fighting for his life. I am fighting for his life and asking that you join in the fight. I wish to try products that are not covered by insurance. We have been doing many different types over the past year trying to heal Wylie. Unfortunately many are used in clinical trials that are not available now because of the treatments he has had. I know of one product available in the U.S. that is could decrease the tumor size. These tumors are multiplying and progressing very rapidly. This product is expensive and would require daily treatments. Wylie's doctor told me today that it would take a miracle for him to survive this tumor progression. She also believes that Prayers are much stronger than any medicine that she could give. Please start your prayer chain keep them going if you want to give Wylie a chance. He is 11 years old. All he wants is a chance to play, ride a bike again, and live. If you have any suggestions, products you wish to donate we can try please e-mail me at backtobasics@elljay.com. Please ask God to help him.

Round One Chemo. Score 1- Wylie 0- Tumor

Round One chemo complete.
December has arrived. November was eventful after the boys and I moving the end of September to our new house to better accomodate Wylie's growing heathcare needs and comfort. Wylie celebrated his 11th birthday on Nov 3rd with a movie then a seafood dinner with a few of his buddies at home. We had our first snowfall of the season already. On the medical side of things we have just completed the first series of chemotherapy treatments. Wylie has been very sick for the past few days. Sort of a normal thing after every other wednesday treatments for the past 2 months. Very confusing as to how much the medicine and how much the tumors are effecting Wylie. He is a strong boy but becoming very frustrated with all the pain,sick feeling, and being unable to care for himself. It is so hard for Mr. independant. He can not play, write even read very well right now. He has been to school a few times this month. He is very smart and usually catches up on those days or with the help of his new homebound teacher Mrs. Roberts. He lost his friend and homebound teacher Mrs. Myra Thomas to metastatic breast cancer recently, she also was his first grade teacher. Wylie can only walk with assistance. Wylie is now wheelchair bound. His last attempt to walk independantly ended with a head injury 2 weeks ago. Getting in and out of the car is his biggest challenge every day having to take his little brother to school and go to work with mom where he has his own room. The therapy has created much more weakness and dizziness than before. We celebrated thanksgiving close to home with lots of turkey and stuffing. He loves his real tree and milticolor christmas lights. He is excited about having a nice Christmas and celebrating it in our new home. Although we only a few nice days out of a week we look forward to the brighter days. Lots of rest and love helps. He is strong and a fighter. Wylie now has a feeding tube because eating has become a chore. Choking not much fun either. Chemo makes all muscles weak even the swollowing muscles. The brainstem where the brain tumor is controls swollowing, breathing, and use of arms and legs. Wylie's brainstem tumor has grown considerably since previous MRI. We pray the chemo and herbal treatments will help slow the progression. His next MRI will be next week. Please pray for a change in this tumor that has devastated Wylie's life. His brother and I want Wylie back to being able to enjoy life with us. He enjoyes movies and playing computer games. Wylie's only wish is to stop hurting. He said he doesn't want anything for Christmas he has everything he needs. But mom knows better! My biggest wish is for my children is to know God, have good health,happiness and to experiece the world first hand. Wylie's top wishes are seeing the Great Barrier Reef in Australia, the Statue of Liberty, the Rocky mountains, Arizona again. We do have an offer to visit a friend in Colorado in the spring. Maybe we will be well enough to go to New York in the summer. Good health and Merry Christmas to everyone!